Can I Butt In?

Brought to you by the charity Bowel Research UK, here we welcome bowel cancer and bowel disease patients, researchers, healthcare professionals and carers to butt in and share their experiences. Your host is Patient and Public Involvement Manager Sam Alexandra Rose. We’re picking a topic every episode and getting to the bottom of it.

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Episodes

7 days ago

In a Rare Disease Day special, Sam provides an overview of several rare and lesser-known bowel conditions, including CIPO (chronic intestinal pseudo-obstruction), mesenteric plexitis, Hirschsprung’s disease, metastatic small bowel obstruction, paediatric IBD, and Enterocutaneous Fistula or ECF. She also explains the ultra-rare genetic condition constitutional mismatch repair deficiency (CMMRD) and its relationship with Lynch syndrome.
Read the transcript for this episode.
Find out more about Bowel Research UK.
Music is “Summer Guitar” by Amaksi from Pixabay and Melancholic Guitar Sting Transitions by VoiceBosch.

011: Self-employment and Illness

Wednesday Feb 14, 2024

Wednesday Feb 14, 2024

Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Pete Wheatstone to discuss his experiences of having bowel cancer while being self-employed. They talk about how bowel cancer symptoms, diagnoses, treatments, and long-term effects impact business for those who work for themselves. They also cover the differences between being employed and self-employed with cancer, including the financial implications, support networks, and communication. Talk also turns to how researchers and clinicians can help people to make informed decisions on an individual, shared decision-making basis.
Read the transcript for this episode.
Find out more about Bowel Research UK.
Music is “Summer Guitar” by Amaksi from Pixabay.

Wednesday Jan 31, 2024

Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Simon Boddis to discuss the nuances of cancer language. What language does the media use to describe people with cancer, what do we say to each other in society, and how does that make us feel? Simon was diagnosed with bowel cancer in 2020 and has a permanent stoma.
Read the transcript for this episode.
Find out more about Bowel Research UK.
Music is “Summer Guitar” by Amaksi from Pixabay.

009: IBD, Stress and Creativity

Wednesday Jan 17, 2024

Wednesday Jan 17, 2024

In this episode of Can I Butt In, Bowel Research UK's Patient and Public Involvement Manager, Sam Alexandra Rose, is joined by Jacqueline Black, a doctoral researcher at Kings College London with a background in health psychology. Some of her work is funded by Bowel Research UK, and they discuss how having a chronic illness can inflict stress on a patient, and how stress can affect the illness that a person experiences. Along with this they outline different methods that people can adopt to cope with that stress that comes with chronic illnesses, including creative writing.
Read the transcript for this episode.
Find out more about Bowel Research UK.
Music is “Summer Guitar” by Amaksi from Pixabay.

Wednesday Jan 03, 2024

Bowel Research UK's Patient and Public Involvement Manager, Sam Alexandra Rose, is joined by Louise Usher, a registered nutritionist, Crohn's disease patient and a guest Blogger for Bowel Research UK. She talks about her past experiences, how she became a registered nutritionist and how that allows her to help others with Crohn's disease. They also talk about the daily and holiday struggles of Crohn's patients and provide useful advice for dealing with the challenges that come with the disease. Furthermore, they provide plenty of information on what to do and what to avoid to reduce the risk of a flare-up while travelling, as well as how to get help from local resources.
Find Louise on LinkedIn.
Read the transcript for this episode.
Find out more about Bowel Research UK.
Music is “Summer Guitar” by Amaksi from Pixabay.

Wednesday Dec 20, 2023

Bowel Research UK's Patient and Public Involvement Manager, Sam Alexandra Rose, is joined by Alicia Toon, Marketing and Communications Executive at Odin Vision. Together, they provide a simple explanation of what AI (Artificial Intelligence) is and what colonoscopies involve. They emphasize the benefits of combining AI with colonoscopies for both doctors and patients. Alicia discusses the research conducted by Odin Vision and highlights that the AI technology they are developing will be used as a tool to assist doctors rather than completely replace them, which has shown to be an important point for patients.
Linked In: Odin Vision
Twitter:  @odin_vision
Read the transcript for this episode.
Find out more about Bowel Research UK.
Music is “Summer Guitar” by Amaksi from Pixabay.

Wednesday Dec 06, 2023

Bowel Research UK's Patient and Public Involvement Manager, Sam Alexandra Rose, is joined by Emma Tuschick and Karen Manton. Emma Tuschick is a doctoral candidate and research associate at Teesside University, while Karen Manton is an expert in bipolar disorder based on personal experience. They are part of a research team investigating the experiences, thoughts, and emotions of individuals with severe mental illness and learning disabilities regarding bowel, cervical, and breast cancer screening. They discuss the barriers and facilitators encountered by people with learning disabilities and mental illness in accessing cancer screening. Additionally, they present some promising research findings that could lead to significant changes and improvements in the medical field.
PErson Centred Cancer Screening Study website: Home - PECCS (northumbria.ac.uk)
PErson Centred Cancer Screening Study Twitter: @PeccsStudy
Information about cervical smear home testing kits Sam mentions in this episode.
Read the transcript for this episode.
Find out more about Bowel Research UK.
Music is “Summer Guitar” by Amaksi from Pixabay.

Wednesday Nov 22, 2023

Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Nigel Horwood, a guest blogger at Bowel Research UK and a Crohn's disease patient. They discuss the importance of organising your medical records appropriately and establishing strong relationships with your medical experts. Additionally, Nigel gives some tips, suggestions and shares some of his experience to help improve quality of life and to self-advocate when it comes to our health.
Nigel's blog & book: https://www.wrestlingtheoctopus.com/
Nigel's Twitter/X: https://twitter.com/Crohnoid
Read the transcript for this episode.
Find out more about Bowel Research UK.
Music is “Summer Guitar” by Amaksi from Pixabay.

004: The Gut Microbiome

Wednesday Nov 08, 2023

Wednesday Nov 08, 2023

Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Simon Carding, Professor of Mucosal Immunology at the University of East Anglia and head of the Food Microbiome and Health Research programme at Quadram Institute in Norwich, along with Adele Sayers, a consulting colorectal surgeon at Sheffield Teaching Hospitals with an interest in IBD. In this episode, they discuss the gut microbiome, explaining what it is, the impacts it has on our entire body and how it is involved in IBD, the potential benefits we get from having a healthy gut microbiome, and how to keep it healthy.
More information from Quadram Institute:
Understanding the Microbiome - Quadram InstituteQuadram Institute (@TheQuadram) / X (twitter.com)https://www.linkedin.com/company/10831092/https://www.facebook.com/QuadramInstitute/The Quadram Institute (@quadraminstitute) • Instagram photos and videos
Read the transcript for this episode.
Find out more about Bowel Research UK.
Music is “Summer Guitar” by Amaksi from Pixabay.

Wednesday Oct 25, 2023

In this episode of Can I Butt In, Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Matt Black and Steven Jones to discuss how workplace culture and environment can impact workers with illnesses and disabilities. Additionally, they discuss what arrangements can be made to improve communication and accommodate people with illnesses or disabilities. Matt had bowel cancer during the COVID lockdown and Steven Jones, founder of the Disability Connect mentoring scheme, is a wheelchair user with spinal muscular atrophy.
Disability Connect is a disability inclusion specialist and works with organisations in the private, public and third sector. They specialise in sharing lived disability experiences through our services including focus groups, reverse mentoring, insight talks, product reviews and more. Details can be found here:
- Website: https://disabilityconnect.org.uk/
- LinkedIn: https://www.linkedin.com/company/disability-connect-mentoring-scheme/?viewAsMember=true
- Twitter: https://twitter.com/DCMS_Mentor
Contact Disability Connect via e-mail: info@disabilityconnect.org.uk
Read the transcript for this episode.
Find out more about Bowel Research UK.
Music is “Summer Guitar” by Amaksi from Pixabay.

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About Bowel Research UK

Bowel Research UK is a national medical research charity dedicated to funding new treatments and potential cures for bowel cancer, inflammatory bowel disease and other bowel disorders. The charity’s goal is to save lives while also enabling people living with chronic bowel conditions to enjoy a much better quality of life.

Find out more about Bowel Research UK.

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