Can I Butt In?

016: Microscopic Colitis

Sam and guest Diane Kelsey draw attention to microscopic colitis – what is it, how is it different to ulcerative colitis, and how does it affect diet and lifestyle? Diane was diagnosed with microscopic colitis in February 2021 shortly after retiring from teaching, and she explains how her condition was diagnosed, what the symptoms were, how she manages it and how it affects her daily life.
 
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Music is “Summer Guitar” by Amaksi from Pixabay.

015: Samplecam Capsule Endoscopy

Researchers Robert Kerrison and Gerard Cummins talk to Sam about Samplecam, an innovative new type of capsule endoscopy currently in the works. They explain their research on Samplecam, which is a video capsule endoscopy that will also be capable of taking samples of the bowel as it travels through it. They discuss what a video capsule endoscopy normally does, how this technology will be different, and the potential impact on the patient. The episode also includes recordings from other members of this research team explaining how the technology could be used in primary care settings and why people with Lynch syndrome are being focused on at first. Rob also explains how patients have had their say in the direction of this research.
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Music is “Summer Guitar” by Amaksi from Pixabay.

014: Ostique Connect App for Ostomates

Sam is joined by Olivia Rose, Chief Marketing Officer at Ostique, to talk about a new app for people with stomas. Ostique Connect is a first-of-its-kind support platform for ostomates, providing the opportunity to connect with others for one-to-one peer support. Olivia and Sam discuss the development of the app and the valuable feedback ostomates have provided during the beta testing process.
Ostique website: https://ostique.co.uk/ 
Ostique Instagram: https://www.instagram.com/ostiqueltd/ 
If you have any questions about the app, you can email Ostique at: office@ostique.co.uk 
 
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Music is “Summer Guitar” by Amaksi from Pixabay.

013: The Nocebo Effect

Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Steve Clark to discuss his research into the “nocebo” effect. Steve was diagnosed with stage 4 colorectal cancer in 2013 and has since become an active patient advocate. In 2017 he set up StriveForFive.org, a not-for-profit organization with the mission to give hope to fellow patients with stage 4 cancer. Steve and Sam talk about the nocebo effect – the idea that environmental influences or ideas could negatively impact treatment for cancer and other illnesses. You can read more about the nocebo effect at the link to the whitepaper below.
Strive For Five website
Steve's whitepapers:
Navigating the nocebo effect through patient engagement is the key to setting patients up for success
Patient Centricity to Integration: Enhancing Cancer Outcomes
 
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Music is “Summer Guitar” by Amaksi from Pixabay.

012: Rare and Lesser-Known Bowel Conditions

In a Rare Disease Day special, Sam provides an overview of several rare and lesser-known bowel conditions, including CIPO (chronic intestinal pseudo-obstruction), mesenteric plexitis, Hirschsprung’s disease, metastatic small bowel obstruction, paediatric IBD, and Enterocutaneous Fistula or ECF. She also explains the ultra-rare genetic condition constitutional mismatch repair deficiency (CMMRD) and its relationship with Lynch syndrome.
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Music is “Summer Guitar” by Amaksi from Pixabay and Melancholic Guitar Sting Transitions by VoiceBosch.

011: Self-employment and Illness

Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Pete Wheatstone to discuss his experiences of having bowel cancer while being self-employed. They talk about how bowel cancer symptoms, diagnoses, treatments, and long-term effects impact business for those who work for themselves. They also cover the differences between being employed and self-employed with cancer, including the financial implications, support networks, and communication. Talk also turns to how researchers and clinicians can help people to make informed decisions on an individual, shared decision-making basis.
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Music is “Summer Guitar” by Amaksi from Pixabay.

010: Cancer and the Use of Language

Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Simon Boddis to discuss the nuances of cancer language. What language does the media use to describe people with cancer, what do we say to each other in society, and how does that make us feel? Simon was diagnosed with bowel cancer in 2020 and has a permanent stoma.
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Music is “Summer Guitar” by Amaksi from Pixabay.

009: IBD, Stress and Creativity

In this episode of Can I Butt In, Bowel Research UK's Patient and Public Involvement Manager, Sam Alexandra Rose, is joined by Jacqueline Black, a doctoral researcher at Kings College London with a background in health psychology. Some of her work is funded by Bowel Research UK, and they discuss how having a chronic illness can inflict stress on a patient, and how stress can affect the illness that a person experiences. Along with this they outline different methods that people can adopt to cope with that stress that comes with chronic illnesses, including creative writing.
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Music is “Summer Guitar” by Amaksi from Pixabay.

008: Nutrition and Crohn’s Disease

Bowel Research UK's Patient and Public Involvement Manager, Sam Alexandra Rose, is joined by Louise Usher, a registered nutritionist, Crohn's disease patient and a guest Blogger for Bowel Research UK. She talks about her past experiences, how she became a registered nutritionist and how that allows her to help others with Crohn's disease. They also talk about the daily and holiday struggles of Crohn's patients and provide useful advice for dealing with the challenges that come with the disease. Furthermore, they provide plenty of information on what to do and what to avoid to reduce the risk of a flare-up while travelling, as well as how to get help from local resources.
Find Louise on LinkedIn.
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Music is “Summer Guitar” by Amaksi from Pixabay.

007: Artificial Intelligence in Colonoscopy

Bowel Research UK's Patient and Public Involvement Manager, Sam Alexandra Rose, is joined by Alicia Toon, Marketing and Communications Executive at Odin Vision. Together, they provide a simple explanation of what AI (Artificial Intelligence) is and what colonoscopies involve. They emphasize the benefits of combining AI with colonoscopies for both doctors and patients. Alicia discusses the research conducted by Odin Vision and highlights that the AI technology they are developing will be used as a tool to assist doctors rather than completely replace them, which has shown to be an important point for patients.
Linked In: Odin Vision
Twitter:  @odin_vision
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Music is “Summer Guitar” by Amaksi from Pixabay.